We are a grassroots group of parents, professionals, and others interested in spreading awareness about congenital CMV with the goal of passing legislation during the 2022 Kentucky General Assembly.
This effort is being initiated in loving memory of Bella Dawn Streeval (2/5/17-4/7/20), as well as all Kentucky children affected by congenital CMV.
“Congenital cytomegalovirus (CMV) infection is a major cause of childhood deafness. Most CMV infections are not diagnosed without newborn screening, resulting in missed opportunities for directed care.”
- To pass universal newborn CMV screening legislation in Kentucky
- To educate women of childbearing age, the general public, healthcare providers, and departments of health about the prevalence and effects of congenital cytomegalovirus (cCMV)
- To advocate for vaccine development
JOIN OUR COMMUNITY
If you are a family affected by CMV, please let us learn more about you!
Also, please check out our levels of participation below. We are looking for families who are willing to tell their story, maybe even testify to legislators about your journey with CMV. Every family we can account for in Kentucky is one more reason for our state legislators to pass Bella’s Bill.
LEVELS OF PARTICIPATION
Tell us about your child’s journey with CMV. Join us on Facebook and share our work with your friends and family. We will keep you updated on our progress.
We are looking for families who feel comfortable sharing their walk with CMV so that we may use their story to educate our state legislators and others across the state. We are asking families to write how they learned their child had CMV and what has happened in the years following their child’s diagnosis. If you would like to include photos, we like to put a face to these stories.
As an ally, we need you to join us on our Legislative Day of Action (virtually, by phone, or in person). We will need as many Kentuckians as we can to contact their state representatives and urge them to support Bella’s Bill.